Patient and Caregiver Resources

Early-Onset Alzheimer’s

If your spouse is younger than 65 and has received an Alzheimer’s diagnosis, you may feel in a world all your own. You probably don’t know anyone else in this situation and may sense a social stigma. It can be scary. Lonely. And feel just not fair!

Look for a support group. You are not alone. In a support group, you’ll find others who understand, as well as valuable tips and strategies. Check out the Alzheimer’s Association to find in-person, virtual, and hybrid groups. Try to find early-onset gatherings. (This is very different from “early stage.”) You might also check out specifically for caregiving partners.

Involve your friends. You need them now—more than ever. And yet they may feel uncertain of what to say or do. Let them know specifically what you need. Perhaps just someone to listen, let you cry when you want. Or maybe you need them to continue including you and your partner in get-togethers. Offer them guidance on best strategies for interacting with your spouse so they can feel more confident about what to expect and how to respond.

Find professionals to help. There are some big issues to tackle, and the time is now to work on them with your partner. A care manager can help you understand what to expect and guide you as the disease unfolds. Consider the assistance of a therapist to get through sensitive topics with your spouse: Finances, sex, household chores, when to tell others, driving, end-stage care. Finally, work with an attorney to create legal documents for when your partner becomes unable to make personal decisions.

Early-onset Alzheimer’s is challenging and moves quickly. There’s no denying it. But you will experience less stress if you reach out early and often to get the support you need.

Does your partner have early-onset Alzheimer’s?

We can help! Call 302.478.5707. As the Delaware, and Delaware and Chester Counties in PA experts in family caregiving, we at Delaware Palliative can provide you with an overview so you know what to expect. We can also provide age-sensitive support for your unique challenges. You don’t have to do this alone.

Find out how we can help you and your loved ones live comfortably:

The region’s leading licensed nonprofit community-based healthcare organization, serving the entire state of Delaware and Pennsylvania’s southern Chester and Delaware counties.

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